Once upon a time (exactly 25 years ago in fact), 12,000 young, enthusiastic and adventurous people descended on a mysterious location one hour east of Paris. And all these youngsters were magically transformed into 'cast members' by passing through a special little school called Disney University. We came out smiling and laughing, excited about a wondrous new place about to open called EuroDisney. We were immortal.
And lots of us were given jobs like room-cleaning, popcorn-selling and heating up french fries. Some of us got super lucky and landed once-in-a-lifetime jobs like driving a steam train, playing a famous character and dancing in parades, performing as real live cowboy, or looking after VIPs and celebrities.
I landed that last job. I genuinely did have a wonderful other-worldly experience in the company of the likes of Gloria Estefan, Kevin Costner, Clint Eastwood, Eva Gabor. And Michael Jackson. Here's me front left in a garish blue uniform, and MJ hiding at the back after we mobbed him with dozens of characters and a marching band.
Also in the picture is the best Mary Poppins I ever met. She was played by Ali Flavell, cheeky and in character enough to turn to Michael Jackson and ask earnestly, "And who might you be young man?" He loved it...
We were having a whale of a time. Or so we thought.
Ali (aka a supercalifragilisticexpialidocious Mary Poppins) was about to be diagnosed with a brain tumour, whilst I was showing the first, mild signs of multiple sclerosis. Ali underwent some seriously aggressive treatment back in the UK, and made a pretty good recovery after six months of rehab. Meanwhile. I blundered on, oblivious to the ticking time bomb in my brain and spine, the protective sheath around my central nervous system being quietly chipped away by my own immune system.
I wasn't diagnosed with MS until 15 years later, Ali started getting unsteady on her feet over time as the ravages of her radiotherapy treatment kicked in. Both of us are now in wheelchairs.
12th April 2017, Ali and I met again at the 25th anniversary celebrations of EuroDisney (now Disneyland Paris.) Here we are, neither of us any good on our feet, but both happy as Larry. For the avoidance of doubt, I'm the one on the left, and she's the pretty one on the right.
Life goes on. Both of us are married, both of us are parents to two boys. I live a happy, if very different life to the one I imagined. And in times of doubt, I fear very much for what my future holds. I can't talk directly for Ali, but every single pic I see her in, she has a beaming smile. And when I talked to her last week, she was full of plans for the future. And just like 25 years ago, she remains blessed with an enormous sense of fun.
I came away elated from bumping into Mary Poppins again, and more determined than ever to live life to the full. Who knows what's around the corner? We're both rather better off than Michael Jackson after all...
A good life (honestly!) with Multiple Sclerosis... I work (for now), I love, I live, I have fun. Just with crutches and wheelchairs and drugs and spasms and catheters and stuff...
Search This Blog for the juicy bits...
Showing posts with label #Michael Jackson. Show all posts
Showing posts with label #Michael Jackson. Show all posts
Thursday, 20 April 2017
Sunday, 1 January 2017
It's a start...
Bounding into 2017 with a blog. Just as I intended to in 2016. And 2015 for that matter. Possibly 2014. Start as you mean to go on and all that!
Big anniversaries, nasty and nice, for me this year.
25 years since I was a proud 'cast member' of the Opening Crew of EuroDisney, now Disneyland Paris. My first job there was looking after 'A' List celebrities, as you do. Michael Jackson, Gloria Estefan, Kevin Costner, Clint Eastwood, Eva Gabor. An endless bank of stories and memories there. And yes, in answer to your question, Michael was weird. I'm taking the family back there for the 25-year bash, 12th April. I'm super-excited about that, with lots of ex-colleagues I haven't seen for a decade or more. Not looking forward to rolling up in a wheelchair though...
I'm in front in the classy blue jacket. MJ is skulking at the back... Young, shy, and very very famous... (him, not me...)
25 years too since the first Multiple Sclerosis symptoms sneaked into my life. I can recall the exact moment and the exact spot in my home French village, Esbly, when I was struck with intense pins and needles down my left-hand side. 'Daggers and nails' would have been a better description. They stayed for three horrible, exhausting days. Then disappeared as quickly as they had attacked me. I was a bloke and in my 20's so of course I ignored it. A crap bladder quickly emerged in the following months. But living in France I could blame excesses of coffee and wine - and I could pee anywhere.
10 years since my official diagnosis. I had a good dozen or so years with very mild MS, even completing a third triathlon as recently as 2004... Strange things were afoot though. Worse bladder; stumbling on my left leg; strange sensations in my thighs; the odd spasm at night; no 'performance', for want of a better word, without a blue pill... Time to talk to countless GPs, neurologists, urologists, MS nurses and take a barrage of tests. The diagnosis was relatively quick, and life would never be the same. For me, for my family, for my friends...
5 years since my first walking stick.That was a huge, horrible 'surrender' but at least it stopped people assuming I was drunk as I bumbled my way down corridors, tripped over steps and crashed into strangers. I've since accelerated through the gears to one crutch, then two crutches, with a 'walker' being delivered next week. Most of the time I'm in a wheelchair though...
5 years since my first hospitalisation for a 'UTI', Urinary Tract Infection. I know it was five years ago. We had just watched Mo Farah live at the stadium, winning his second gold medal of the London Olympics before we headed off for a UK holiday. That was rudely interrupted by a high fever, nastiness with my bladder, a 999 call and a blue-light excursion to Exeter hospital.Two nights in the Acute Ward on a drip.
1 year since my second UTI hospitalisation, this time during the Rio Olympics. Three nights. Drip again. My MS Nurse congratulated me on 'only' getting a bad infection every four years!
Some anniversaries that don't quite fit any pattern. 18th wedding anniversary, 11th work anniversary. I am grateful in very different ways for my lovely wife and my amazing employers for sticking by me!
It's going to be quite the year...
Big anniversaries, nasty and nice, for me this year.
25 years since I was a proud 'cast member' of the Opening Crew of EuroDisney, now Disneyland Paris. My first job there was looking after 'A' List celebrities, as you do. Michael Jackson, Gloria Estefan, Kevin Costner, Clint Eastwood, Eva Gabor. An endless bank of stories and memories there. And yes, in answer to your question, Michael was weird. I'm taking the family back there for the 25-year bash, 12th April. I'm super-excited about that, with lots of ex-colleagues I haven't seen for a decade or more. Not looking forward to rolling up in a wheelchair though...
I'm in front in the classy blue jacket. MJ is skulking at the back... Young, shy, and very very famous... (him, not me...)
25 years too since the first Multiple Sclerosis symptoms sneaked into my life. I can recall the exact moment and the exact spot in my home French village, Esbly, when I was struck with intense pins and needles down my left-hand side. 'Daggers and nails' would have been a better description. They stayed for three horrible, exhausting days. Then disappeared as quickly as they had attacked me. I was a bloke and in my 20's so of course I ignored it. A crap bladder quickly emerged in the following months. But living in France I could blame excesses of coffee and wine - and I could pee anywhere.
10 years since my official diagnosis. I had a good dozen or so years with very mild MS, even completing a third triathlon as recently as 2004... Strange things were afoot though. Worse bladder; stumbling on my left leg; strange sensations in my thighs; the odd spasm at night; no 'performance', for want of a better word, without a blue pill... Time to talk to countless GPs, neurologists, urologists, MS nurses and take a barrage of tests. The diagnosis was relatively quick, and life would never be the same. For me, for my family, for my friends...
5 years since my first walking stick.That was a huge, horrible 'surrender' but at least it stopped people assuming I was drunk as I bumbled my way down corridors, tripped over steps and crashed into strangers. I've since accelerated through the gears to one crutch, then two crutches, with a 'walker' being delivered next week. Most of the time I'm in a wheelchair though...
5 years since my first hospitalisation for a 'UTI', Urinary Tract Infection. I know it was five years ago. We had just watched Mo Farah live at the stadium, winning his second gold medal of the London Olympics before we headed off for a UK holiday. That was rudely interrupted by a high fever, nastiness with my bladder, a 999 call and a blue-light excursion to Exeter hospital.Two nights in the Acute Ward on a drip.
1 year since my second UTI hospitalisation, this time during the Rio Olympics. Three nights. Drip again. My MS Nurse congratulated me on 'only' getting a bad infection every four years!
Some anniversaries that don't quite fit any pattern. 18th wedding anniversary, 11th work anniversary. I am grateful in very different ways for my lovely wife and my amazing employers for sticking by me!
It's going to be quite the year...
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